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Dear Faculty
and Staff,
A student in our building,
_______________________________, has been diagnosed with an autoimmune
disorder called celiac disease (CD). While this will affect some
aspects of classroom and school management, patience and understanding
can bring about the necessary changes that will quickly become a
natural part of the school experience for all involved.
Also known as celiac sprue
or gluten-sensitive enteropathy, CD is a genetic disorder. In people
with CD, eating certain types of grain-based proteins sets off an
autoimmune response which causes damage to the small intestine.
This, in turn, interferes with the small intestine's ability to
absorb the nutrients found in food, leading to malnutrition and
a variety of other complications. The offending proteins are collectively
called gluten and are found in wheat, barley, rye and, oats* (W
BRO ), and all of their derivatives.
Ultimately, it is the responsibility
of the student to decide what he or she will eat and touch while
at school. The student knows there are physiological consequences
for his or her decisions. However, a newly-diagnosed celiac may
need your help to reinforce the prescribed lifestyle change. The
student may also be going through the grieving process because of
the diagnosis. If you notice symptoms of grieving or other needs
that this student may have, please be understanding and offer the
student any help that may be required.
It is important to note that
if this student should come into physical contact with any of the
offending grains, it will be necessary to remove all protein residue
from his or her skin as quickly as possible. If contact does occur,
the student may also have an urgent need to use the restroom due
to the possible onset of uncontrollable physical symptoms. The student's
instant reaction may be to "run" to a sink or toilet without asking
for permission. Because of this, special restroom privileges may
be needed.
Please note that any member
of the staff with primary responsibilities for this student has
received specific information to help meet this child's special
needs. If you would like to learn more about this disease, you are
invited to visit the Celiac Sprue Association 's web site at www.csaceliacs.org.
Thank you for all you do
to make our school a nurturing and caring environment for every
child.
Sincerely,
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