DDNC—17th Annual Public Policy Forum Meeting Sunday, March 11, 2007 & Monday, March 12, 2007
- CSA’s delegation includes 8 individuals joining other members of the DDNC.
- Diane Eve Paley, DDNC treasurer, presented a report on celiac disease from the patient’s perspective.
- The Public Policy Forum and Diane's presentation were to advise the attendees before visiting with their US Senators and Representatives Monday, March 12, 2007.
To learn more
Awareness—CSA has provided the following services to promote visibility of celiac disease:
- Seal of Recognition for product identification program
- Funding and promotion of the radio production Gut Reaction Educational materials to physicians and dietitians News release to the media
- October Celiac Disease Awareness Month
Education—CSA serves individuals with educational information through:
- Personal, non-medical assistance by telephone and e-mail
- Updated Web site averaging over two million hits per month
- Mailing over 88,000 items
- Annual conference
- Speaker’ bureau
- Participation at health fairs nationwide
Support—CSA has a nationwide network of:
- Resource units
- Chapters
- Cel-Kids Network
- Camps with dedicated facilities for the needs of youth with CD and DH
- Special conferences
Government—CSA utilized the following opportunities to assist and educate government leaders:
- Testifying at the United States Food and Drug Administration hearing on Definition of Gluten-Free utilizing the CSA member survey results and analysis
- Membership input to FDA hearings on Approaches to Establish Thresholds for Major Food Allergens and for Gluten in Food
- Provided public testimony at both July and August FDA Hearings
- Web site links for CSA membership submissions to FDA
- Membership in Digestive Disease National Coalition and participation in its activities
- Revision of National Digestive Disease Information Clearinghouse brochure on celiac disease
Research—CSA supports:
- Existing university-based research programs to initiate new development in grains and food sciences
- Applied research relevant to living a full life with celiac disease
- Testing for presence of gluten in commercial products
|
